[Rare Diseases: chronic diseases that need a new approach].

Moving Towards Accountability for Reasonableness – A Systematic Exploration of the Features of Legitimate Healthcare Coverage Decision-Making Processes Using Rare Diseases and Regenerative Therapies as a Case Study

Background The accountability for reasonableness (A4R) framework defines 4 conditions for legitimate healthcare coverage decision processes: Relevance, Publicity, Appeals, and Enforcement. The aim of this study was to reflect on how the diverse features of decision-making processes can be aligned with A4R conditions to guide decisio...

The Impact of Resilience on the Perception of Chronic Diseases From Older Adults\' Perspective

Background: Older adults with chronic illnesses face many challenges related to their diseases and need higher resilience capacities to overcome. Resilience, as a mediator among various dimensions of health, can lead to positive health outcomes in such people. The current study aimed at discovering the impact of resilience on the perception of chronic disease from older adults' perspective.  M...

A review of 17 years of application of partnership care model on the consequences of chronic diseases: Describing and assessing the quality of the methodology of papers

Background: Regarding the widespread prevalence of chronic diseases, nurses need to understand the choices, priorities, and abilities of patients in reality, their communication, and the social context in order to play their professional role and responsibility. This review study was conducted with two purposes: determining the effect of partnership-care-model (PCM) on the outcomes of chronic d...

Editorial: Computational Neuroscience and Modeling of Diseases: Do We Need New Paradigms?

Severe muscle weakness during treatment with pegylated interferon alfa for chronic hepatitis C virus infection A rare complication

Background: Interferons (IFNs) are common therapeutics for several diseases such as viral hepatitis, multiple sclerosis and malignancy. A variety of autoimmune related side effects have been observed during IFN therapy. Rare cases of myopathy, polymyositis or dermatomyositis have been reported during therapy with high doses of IFN^5. Case Presentation: In this report, we describe a case with se...